Pass on the Positivity

โ€‹By mid-January, my body felt completely unfamiliar. Pain, neuropathy, nausea, swallowing problems, cold sensitivity, and fatigue all fought for attention like competitors in a misery pageant. But beneath the turmoil, something else was beginning to form: structure.

January didnโ€™t bring progress.

January brought discipline.

That distinction would end up saving my life.

Me sat waiting for my chemo infusion

The Cold, the House, and the Quiet War

January in the UK is cold even at its best. January with oxaliplatin in my veins was something else entirely. My nervous system reacted to temperature as if I were made of exposed wires.

Walking into our downstairs bathroom felt like entering a freezer aisle. The air cut my throat like a blade. I couldnโ€™t touch anything metal without flinching. I couldnโ€™t open the fridge without my hand spasming. Cold air outside felt like swallowing electricity.

So we adjusted.

We added an electric radiator in the bathroom so I could use it safely. Ana stayed close with a protective vigilance that appeared calm but was fueled by pure adrenaline. Our house became a fortress of warmth – blankets, heaters, kettles, thick socks, warm drinks, all arranged around a nervous system that had become sensitive to winter.

Pain was constant.

Cold was dangerous.

Food was difficult.

But the house held me together.

Small adjustments turned into survival strategies.

January is made of those.

fawn pug covered by Burberry textile between plants
Photographer: Matthew Henry | Source: Unsplash

Survival Mode: The Daily Routine That Kept Me From Unraveling

Jan didnโ€™t give me the strength to be motivated. So I built routines that didnโ€™t rely on motivation at all.

HBOT

I kept attending HBOT several times a week. At that point, it wasnโ€™t about shrinking tumours or boosting my immune system – it was about having somewhere predictable to go. A chamber where pain felt dull. A space where I could read, breathe, think, or simply exist without anyone needing anything from me.

Breathwork

Every morning, without fail, I spent 15 minutes doing Wim Hof breathing. Not for enlightenment. Not for Instagram. When youโ€™re fighting to stay alive, breath becomes the one thing you can control.

Vegetarian Keto & Fasting

Food was still hard to swallow, but I did my best to maintain ketosis. It gave my days a rhythm.
And, even when I wasnโ€™t sure if it was helping, it provided structure. January is impossible without structure.

Sauna

The heat felt like punishment, but strangely, it gave me a sense of control.

Red Light & PEMF

Nights on the PEMF mat became a ritual. A place to breathe.
Red light felt like a gentle reset for a system that was under chemical attack.

Supplements

Not the off-label medications yet – those wouldnโ€™t start until the last week of January. But the core supplements and nutritional interventions were in place. In a month where I felt like a passenger in my own body, taking something proactive each day mattered.

January is the month when survival mode becomes a method.

a plate with food on it
Photographer: Natali Hordiiuk | Source: Unsplash

Grief Has Its Own Timekeeping

The grief for my mum deepened in January. Not in a dramatic, cinematic way.
In the quiet, relentless way grief really works.

Hospitals look different when the person who knows them best is gone. My mum spent her life as a palliative care nurse, helping people through what I faced.
She should have been there.
She should have been guiding me.
She should have been telling me which nurse to ask for, which questions to push, which red flags mattered and which didnโ€™t.

Instead, every waiting room felt empty.
Every hospital bed felt like an echo.
Every time I was admitted, I felt my mumโ€™s absence more sharply than the cannula needles piercing my skin.

Grief doesnโ€™t wait for the right moment.
It arrives when your body is already burning, and it starts its own fire too.

January is when I felt both.

Me, my brothers (Lea, left. Joel, middle) and our mum (Mel – Granny Naughty) at my grannyโ€™s funeral in 2019

Dukeโ€™s Absence

Dukeโ€™s absence hit hard as well.
Our house had a dog-shaped rhythm for two years. He was 70kg of pure love and chaos, a harlequin Great Dane who thought he was a lap dog.
Letting him go in November was best for him, but January made the absence unbearable.

Cancer makes you painfully aware of whoโ€™s missing from your life.
The big silence where he used to be felt as loud as any side effect.

I missed him more in January than in December.
Perhaps because I needed comfort.
Perhaps because I needed distraction.
Perhaps because January is when the truth of what cancer takes truly sinks in.

Duke (1 at this point) meeting his new brother (Cole – maybe 3m)

Financial Reality & the Small Relief That Changed Everything

December had been a blur of paperwork mixed with pain, chemo, and grief. We filed for critical illness insurance, applied for my pension, and submitted the claim for my life insurance under the sub-12-month prognosis clause.

In January, the news came in:
the critical illness payout was approved.

This mattered more than anyone outside a cancer diagnosis can understand.

It meant:

  • I didnโ€™t have to work in January.
  • We didnโ€™t have to fear losing the house.
  • Ana could focus on the boys and on me.
  • I could fully commit to treatment without guilt over not earning.

It didnโ€™t make cancer easier.
But it lifted a weight that could have crushed me.

Sometimes the most life-saving thing isnโ€™t a drug – itโ€™s breathing space.

Mid-to-Late January – The Plan Begins to Take Shape

January was hell. But it was also the month the plan started to fall into place in a meaningful way.

The Mistletoe Therapy Begins

After my NCIM consult on the 14th, mistletoe injections were added. Not with fanfare – quietly, methodically.
One more pillar.

The Interpreted NGS Data

With the Datar results from the Astron report in hand, I reviewed every page, every biomarker, every metabolic pathway.
For the first time, I could see:

  • what drugs made sense
  • what interventions were compatible
  • what to ignore
  • what the tumour was likely to respond to
  • which off-label strategies had biochemical reasoning
  • how my specific tumour actually behaved

January didnโ€™t give me strength.
But it gave me clarity.

The Off-Labels Arrive

Finally, in the last week of January, my off-label medications arrived.

Not all at once.
Not with ceremony.
Just quietly, in the mail, like any regular package.

But to me, they were the first true weapons Iโ€™d held since my diagnosis.

For weeks, Iโ€™d been building the foundation – keto, fasting, HBOT, supplements, lifestyle, breathwork. Now I finally had the pharmacological side too.

This was the moment my treatment became a strategy, not just a schedule.

turned on monitoring screen
Photographer: Stephen Dawson | Source: Unsplash

The Dentist, the Mercury Filling, and Control

Removing the mercury filling wasnโ€™t motivated by fear.
It was about control.

January leaves you feeling like your body is a house with all the windows blown out.
You cling to anything that gives you a sense of patching something back together.

A filling was symbolic.
It was me saying:
โ€œIโ€™m not leaving any question unanswered. No angle unexamined. No door unlocked.โ€

Even with tentative science, the psychology was solid.

And January is a month built on psychological survival.

Support: The Unspoken Backbone Behind the Month

Throughout January, Ana was the backbone of the operation.
She drove me to chemo.
She learned cannulation while still healing from her lung surgery.
She kept the boysโ€™ lives feeling stable.
She held the house together.
She kept me alive in a hundred small ways that wonโ€™t make it into a research paper but made all the difference.

And and I out for a walk

And Jo appeared quietly, like a hero in scrubs.
She stepped in when we needed her.
She monitored.
She reassured.
She stabilised the chaos.

Jo, who caught me off guard on one of my many hospital visits

January wouldnโ€™t have been manageable without them.

But their full story is the next chapter.

Januaryโ€™s Ending: A Line in the Sand

By January 31, nothing in my body felt โ€œbetter.โ€
Pain was still high.
Neuropathy was still hell.
Fatigue was still a weight I couldnโ€™t lift.
Swallowing was still painful.
Sleep was still broken.
Cold sensitivity still made winter feel harsh.
And the losses – Mum, Duke – still hurt every day.

But something had changed:

  • I had a routine.
  • I had information.
  • I had a team.
  • I had mistletoe therapy.
  • I had a growing metabolic protocol.
  • I had HBOT, fasting, breathwork, and daily disciplines.
  • I had financial breathing room.
  • I had the off-labels in hand.
  • I had the NGS results that outlined the battlefield.
  • I had a quiet, stubborn clarity I hadnโ€™t had in December.

January didnโ€™t bring improvement.
January brought direction.

And sometimes direction is enough to keep you alive long enough for improvement to come.

January was the month I nearly broke.
It was also the month I began fighting back.

Cheers from mum


Pass on the Positivity

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